In view of potential advancements in data-driven, ‘personalised’ medicine, individualised health data (body data, behavioural data as well as clinical and other data, e.g. nutritional data) have become the focus of social interest. In addition to the promise of optimised individual healthcare, the use of health data offers the potential for scientific progress and, not least, economic benefits. Above all, generative artificial intelligence will no longer only be involved in (co-)producing intellectual works or inventions. Rather, it could also be able to create ‘virtual human twins’ with the help of medical data, especially clinical data, as well as data collected by patients themselves (self-tracking).
The scientific objectives of the project group are to analyse the relationship between the data representation generated by digital twins and the human body, as well as the legal and ethical challenges that arise from it. The group will examine how digital twins could act as ‘data bodies’ with their own legal status and social efficacy and what effects this has on health data rights and access. An interdisciplinary approach will be taken to create a well-founded inventory of the phenomenon and to support current regulatory debates through targeted publications.
Principal Investigators
Prof. Dr. Malte-C. Gruber, Justus-Liebig-Universität Gießen | spokesperson | more information
Prof. Dr. Doris Schweitzer, Goethe-Universität Frankfurt | deputy | more information
Prof. Dr. Steffen Augsberg, Justus-Liebig-Universität Gießen | more information
Prof. Dr. Andreas Fischer-Lescano, LL.M (EUI), Universität Kassel | more information
Prof. Dr. Petra Gehring, Technische Universität Darmstadt | more information
Approaches to the digital twin: On the emergence of data bodies
Interdisciplinary conference
28 November 2024 | 4:00 – 6:00 p.m.
29 November 2024 | 9:15 a.m. – 4:30 p.m.
Justus-Liebig-Universität Gießen
Dekanatssitzungssaal
Licher Straße 72
35394 Gießen
With an initiative launched last year (2023) to support the development of ‘European Virtual Human Twins’ for the public health sector, the European Commission has formulated the goal of digitally reproducing the human body and making it usable for clinical decision support systems, health prognosis tools and other concepts of personalised medicine.
The conference is being organised by the Human Medical Data Bodies project group of the Centre Responsible Digitality (ZEVEDI) as a kick-off workshop.
Registration
by 24 November 2024 at julia.becker@recht.uni-giessen.de
